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BEYOND PROGRAMS: A PARABLE
By Michael McCarthy
In the beginning,
there was placement, and lo we were happy when it happened, as placement
was not mandated for adults who happened to experience severe
disabilities. And so we said, this is good. And placement multiplied and
filled the earth.
And then, we said, let us make programs, which focus on serving clients.
And clients were defined, and labeled, and grouped according to their
labels and assigned to programs based on their labels.
And programs created services for each label, and state agencies
developed unit costs for each service. And programs prospered and
multiplied, and we said, this is very good.
And as programs prospered and multiplied, a cry arose: Let us evaluate
these programs to see how good they really are. And program evaluation,
state regulations, quality assurance, compliance plans, and other
program measures were created. And they multiplied and filled volumes.
And in those times, a person arose who was a client, but who was also
a prophet, and said:
"I don't want to be a client, I want to be a person.
I don't want a label, I want a name.
I don't want services, I want support and help.
I don't want residential placement, I want a home.
I don't want a day program, I want to do meaningful productive
I don't want to be 'programmed' all my life: I want to learn to do
things I like,
and go places which I like.
I want to have fun, and enjoy life and have friends.
I want the same opportunities as all of you:
I want to be happy."
And there was a long silence. And lo, everyone realized that they must
look beyond their programs. But they were troubled, and they asked:
"How can we do this? Would not each person need their own unique
program and system of support and his own individual measure of
And the prophet replied:
"Even as you say, so should it be done -- just as you do for